Cedarville University

Individuals may:
- Give advice to research team about what to do 
 - Lead and control research
- Work together as a group with different jobs based on individualized interests and skills

How Individuals with Intellectual Disabilities are Involved in Inclusive Research

Bigby, C., Frawley, P., & Ramcharan, P. (2014). Conceptualizing Inclusive Research with People with Intellectual Disability. Journal of Applied Research in Intellectual Disabilities, 27(1), 3–12. https://doi.org/10.1111/jar.12083 

Conceptualizing Inclusive Research with People with Intellectual Disability


Broad Approaches to Inclusion of people with Intellectual Disability in Research

Training and preparation for data collection

Strategies include:
 -   Turn taking
 -   Utilizing scripts
 -   Line by line coding
 -   Group based thematic analysis
 -   Find interesting bits
 -   Decipher what fits into transcript

 Instances in which Individuals with ID are in control in research


- Typically listed as sole or co-author
- Papers about processes or methods	
  - Typically found in peer reviewed literature
- Papers that report findings
  - Less common
  - More likely to be located in unpublished research reports

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