- Individuals who are invited to participate in this research are not always subjects in the specific content of the study.

- They may simply be the most likely people to participate because of their public advocacy.

Cedarville University

This term is used to refer to how individuals with ID are involved in research through prioritizing design as well as advising on and disseminating on research.

Experts by Experience

Bigby, C., Frawley, P., & Ramcharan, P. (2014). Conceptualizing Inclusive Research with People with Intellectual Disability. Journal of Applied Research in Intellectual Disabilities, 27(1), 3–12. https://doi.org/10.1111/jar.12083 

Conceptualizing Inclusive Research with People with Intellectual Disability


 Not all Individuals with ID are experts 


It is discriminatory to generalize the abilities of the ID community to a select few individuals. For example, one would not assume that all amputees have the same perspective. They have different life experiences so they will not all have the same opinion. So why should we assume that people with a broad spectrum of abilities and experience resulting from their ID would have the same perspective?

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