One study found that lifetime costs for patients in North America and Europe could reach 1.9 million euros per patient
No comprehensive studies are available regarding financial burden of CF and risks and rates of depression and anxiety

Financial Burden of Cystic Fibrosis

The TIDES study found that 34% of mothers and 25% of fathers had elevated symptoms of depression
48% of mothers and 36% of fathers reported symptoms of anxiety
The study also found that if either parent had a higher depression measure, then the adolescent was 4.8 times more likely to have a higher depression measure

Often times, treatments for adults may not be as efficient as treatments for adolescents and vice versa. As such, the lived experiences of patients of different age demographics with the same chronic condition can vary widely. So, the need to examine the realities and burdens faced by both groups separately is important in understanding the overall psychological burden of cystic fibrosis.

Experiences in Different Age Groups of Cystic Fibrosis Patients

Quittner, A. L., Saez-Flores, E., & Barton, J. D. (2016). The psychological burden of cystic fibrosis. Current Opinion in Pulmonary Medicine, 22(2), 187–191. https://doi.org/10.1097/mcp.0000000000000244

reference for the psychological burden of cystic fibrosis

Studies indicate that teens with cystic fibrosis are more likely to anxiety and depression
Adolescence and teen years are critical formative years and navigating CF during this time can lead to a greater risk of anxiety and depression.

Psychological Burden of Cystic Fibrosis on Adolescent Patients

A major comprehensive study of CF patients found that 29% of adult patients had elevated symptoms of depression.
Another study found that CF patients diagnosed with depression were hospitalized three times more than non-depressed patients.

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