It can be helpful if the substitute decision-maker does not know the patient very well, or to the extent that is needed to make personalized decisions on behalf of the individual. Physicians should encourage the substitute decision maker to consult trusted caregivers that know the patient well.

Why use Shared Decision Making?

It involves striving to know the patient and caregiver while building good relationships based on effective communication and trust.

Central Principle for Implementing Shared and Supported Decision Making

It is a process of mutual agreement between the patient, caregiver, and physician. This approach is dynamic and exploratory, combing the input of all three parties.

Cedarville University

The steps in the health care decision-making process include: assembling information relevant to the patient's health situation, formulating a diagnosis and prognosis, verifying the diagnosis and prognosis, and deliberating on possible medical interventions that align with the patient's goals or values.

Health Care Decision-Making Process

Sullivan, W. F., & Heng, J. (2018). Supporting adults with intellectual and developmental disabilities to participate in health care decision making. Canadian family physician Medecin de famille canadien, 64(Suppl 2), S32–S36.

Supporting adults with intellectual and developmental disabilities to participate in health care decision making

Shared Decision Making

It is an alternative to appointing a legal appointment, guardian, or other decision maker to make decisions and arrangements on behalf of an adult with IDD. Caregivers engage as supporters of patients.

Supported Decision Making

It is important for the patient and caregiver to be involved in the process of deciding what interventions are needed and how they can be implemented

Interventions in the Decision Making Process

Assist patient and caregiver in clarifying and discussing the patient's values and the plausible associated interventions.

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