- Caregivers had a significant loss of practical support
  - Lack of respite and relief 
- Lack of educational services
-  Lack of usual support networks
  - In hindsight, some said they wished they had reached out for other forms of support networks


Cedarville University

- Caregivers experienced distress due to lack of clarity and ambiguity from the government
- Significant lifestyle changes
  - Education Provisions
  -  Day to day routines 
  -  Loss of activities
  - Planned life events
- There were also anxieties about the future and getting back to the normalcy of daily life
  - Providing developmentally appropriate and concrete answers to their children was not possible
- There was a general need for certainty

How the Uncertainty of COVID 19 Cause Distress in Caregivers of Children with Neurodevelopmental Disabilities

Gillespie-Smith, K., McConachie, D., Ballantyne, C., Auyeung, B., & Goodall, K. (2023). The Impact of COVID-19 Restrictions on Psychological Distress in Family Caregivers of Children with Neurodevelopmental Disability in the UK. Journal of Autism & Developmental Disorders, 53(4), 1573–1587. https://doi.org/10.1007/s10803-021-05132-3

The Impact of COVID‑19 Restrictions on Psychological Distress
in Family Caregivers of Children with Neurodevelopmental Disability
in the UK

The Lack of Relief and Social Support for Caregivers of Child with Neurodevelopmental Disabilties During the Covid 19 Pandemic

- The reported distress could be partially attributed to the perceived absence of support from social, health, and education services
-  Feeling they were left alone to support themselves
  - Meeting complex educational, sensory-related, medical, and social care needs
- Caregivers were worried that changes in routine and behavior were not sustainable and they could have negative implications for the future

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