Previous research reports that siblings of individuals with DD have the same or better quality relationship than those of typical sibling pairs. There is a conflicting report that suggests that living with a sibling with a DD has a negative impact on development. Examples include low self-concept, depression, guilt, regret, and behavior problems.

Mixed Results Impact of Sibling relationships for Individuals with Developmental Disabilities

Siblings of Individuals with Disabilities

It is estimated that there are 300,000 individuals with developmental disabilities in the United States.

Cedarville University

Individuals with Intellectual and Developmental Disabilities

IDD 

Saxena, M., & Adamsons, K. (2013). Siblings of Individuals with Disabilities: Reframing the literature through a bioecological lens. Journal of Family Theory & Review, 5(4), 300–316. https://doi.org/10.1111/jftr.12021

Siblings of Individuals With Disabilities: Reframing the Literature Through a Bioecological Lens


CB are displayed by up to 60% of the adult IDD population. Example behaviors include physical aggression toward others including self (self-injurious) and property, and verbal aggression. 

CB may be difficult to manage as it can cause stress to the individual, their families, and those around them. It can also lead to restrictive practices as well as loss of community based placements. This can lead to hospitalization and a limited access to long term care facilities.


Challenging Behaviors (CB)

Early
  - Apathy 
  - Withdrawal

Late
 - Severe intellectual deterioration
 - Marked Changes in Personality and Mood
 - Loss of Sphincter Control
 - Onset of epileptic seizures 
 - Loss of mobility with increased muscle tone
 - Eventual complete loss of all self-help skills

Common Early and Late Symptoms of Dementia in individuals with IDD

Intellectual Developmental Disorder (Intellectual Disability) – the specific disorder, not general category – is recognized by deficits in both intellectual functions and adaptive functions that are present in conceptual, social, and practical domains of everyday life. The onset of these deficits is required to be during the developmental period. 

Intellectual Developmental Disorder (Intellectual Disability)

Intellectual Developmental Disorders (Intellectual Disabilities) are recognized through deficits in general mental abilities. These include reasoning, problem solving, planning, abstract thinking, judgement, academic learning, and learning from experience. These deficits can result in impairments of adaptive functioning, causing the individual to not meet standards of personal independence and social responsibility in one or more aspects of daily life. These aspects include communication, social participation, academic or occupational functioning, and personal independence at home or within the community. 

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