Researchers without ID who contribute to inclusive research aim to achieve publication or may simply be doing it because it is a requirement for funding. Yet there is a lack of protocol for how these researchers should treat their coresearchers with disabilities. Individuals with ID are vulnerable to maltreatment and they may have a misunderstanding of their role in research. It is no surprise that there are accusations of dishonest intentions.

Sincerity of Involvement in Inclusive Research

Early commentaries of inclusive research raised questions about the nature and honesty of support. Allegations include words like ghost writing, stage management, and puppets.

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There are several researchers that cast doubt on the credibility and reliability of inclusive research.

Issues for Consideration for Inclusive Research

Bigby, C., Frawley, P., & Ramcharan, P. (2014). Conceptualizing Inclusive Research with People with Intellectual Disability. Journal of Applied Research in Intellectual Disabilities, 27(1), 3–12. https://doi.org/10.1111/jar.12083 

Conceptualizing Inclusive Research with People with Intellectual Disability


In the past, researchers have questioned the conceptual capabilities of individuals with ID. A concern like this may come from a lack of knowledge about inclusive research. Inclusive research is not simply a copy of regular research, but it utilizes the strength and abilities of individuals with ID and their perspective on research.

Doubting the Capabilities of People with ID in Inclusive Research

The Controversy of Support in Inclusive Research

Richardson (1997) urged that there may be a negative impact on the individual after exploring and obtaining more knowledge about their own experiences of being discriminated against and oppressed.

Detriments of Inclusive Research

Inclusive research differs from non-inclusive research in that it requires far more monetary and human resources. It also requires a large time and monetary commitment from all individuals involved. In order to ensure the purposes and tasks of each member are being fulfilled, the time line for completion is much longer than other, non-inclusive projects.

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